Authors | Year | Design | Sample size | Rater | Age range | Population | Controls | Outcome measures | Country/region | |
---|---|---|---|---|---|---|---|---|---|---|
Mean (SD) | Median (IQR) | |||||||||
Gottrand et al. | 2005 | multicenter study | 72 | child | 4 (NA) years | children receiving HPN | reference pediatric population | Auquei questionnaire, Qualin, Ok.ado, and Subjective Quality of Life Profile questionnaires | France/ Europe | |
Kum et al. | 2024 | cross-sectional | 29 | child/parent | 10 (9–13) years | pediatric patients with NEC | age-matched healthy controls | PedsQL™ | Hong Kong/Asia | |
McCaig et al. | 2021 | cross-sectional | 53 | child/parent | 6.2 (3.9) years | patients with PIF | reference pediatric population | PedsQL™ | US/NA | |
Mutanen et al. | 2015 | cross-sectional | 36 | child/parent | 9 (1–27) years | patients with PIF | age-sex-matched healthy controls | PedsQL™ | Finland/Europe | |
Nagelkerke et al. | 2022 | observational study | 35 | child/parent | 5.3 (2.9–9.7) years | children receiving HPN | reference pediatric population | PedsQL™ | The Netherlands/Europe | |
Neam et al. | 2020 | cross-sectional | 91 | child/parent | NA (only < 18 years) | patients with PIF | reference pediatric population | PedsQL™ | US/NA | |
Olieman et al. | 2012 | cross-sectional | 31 | child/parent | 11.8 (4.2) years | children with SBS | age-sex-matched healthy controls | PedsQL™ | The Netherlands/Europe | |
Pederiva et al. | 2018 | cross-sectional | 30 | child | 10.9 (NA) years | children with SBS | reference pediatric population | PedsQL™ | UK/Europe | |
Sanchez et al. | 2013 | cross-sectional | 23 | parent | 28.54 (16.87) months | patients with PIF | reference pediatric population | PedsQL™ | US/NA | |
Silva et al. | 2023 | retrospective multicenter study | 20 | child/parent | 7.5 (5.0) years | patients with PIF/SBS | reference pediatric population | PedsQL™ | Portugal/Europe | |
So et al. | 2021 | cross-sectional | 21 | child/parent | 8.33 (6.96–11.04) years | patients with PIF | age-sex-matched healthy controls | PedsQL™ Physical Function subscale | Canada/NA | |
Wong et al. | 2022 | prospective study | 69 | child/parent | 8 (6–10) years | patients with PIF | reference pediatric population | PedsQL™ | US/NA |